We are on the verge of a once-in-a-generation opportunity to determine the future of healthcare in Europe.

To seize this decisive moment, MEP Stelios Kympouropoulos is hosting an event in the European Parliament, Brussels, focusing on the upcoming proposals under the Pharmaceutical Strategy, with a particular focus on rare diseases on 8 February 2023, 18:00-20:00 CET.

In addition to keynote presentations from high-level speakers, our exciting line-up of panellists will address:

The reality of living with rare disease
The value of newborn screening: An SMA (spinal muscular atrophy) case study
Key issues related to the revision of the EU pharmaceutical framework

This event will be a prime opportunity for a discussion amongst EU policymakers, academia, civil society and industry to assess key issues in the spirit of collaboration and to examine how the EU Pharmaceutical Strategy can shape European healthcare and innovation.

This initiative is being organised thanks to the support of EFPIA and the endorsement of our partners Screen4Rare, the Greek Patients Association, and SMA Europe.

Stay tuned for more details and speaker announcements!

*Do not hesitate to reach out to jonathan@acumenpa.com if you have any questions or issues with the registration process. Practical information will be communicated via email before the event. This is an in-person event.

**For those without Parliamentary accreditation, it is no longer possible to register.

This event can be followed with Greek interpretation.

Time to act: Building a pharmaceutical framework fit for rare diseases